FAQs and Privacy Policy

The 1MCC initiative uses mixed-methods research for both qualitative and quantitative data collection and listening, through a combination of online and text surveys, in-person discussion and focus groups, voicemails, and door-to-door canvassing.

The 1MCC Initiative collects information about your experiences with care, what you need, what you believe is missing, and your hopes and wishes for the future of care. 

Specifically we collect: 

• Your name (or pseudonym), email, zip code, state/town or city.
• Your own relationship to care issues.
• For data analysis and research purposes, we scrub all your information before sharing it with partners in the initiative. 
• For public storytelling purposes, we scrub all personally identifying information, with the exception of your first name or pseudonym, city and state. 
• For the 1 Million Conversations opt-in email list, you have the ability to optionally volunteer your name, ZIP code, and email address, to receive ongoing updates, narrative insights and findings from the initiative.

Any data we collect — such as your name, contact details, demographic information, or survey responses — will be scrubbed for personally identifiable information before it is shared with partners in the initiative. All data is used for internal data analysis and understanding care needs across communities. 

For your data, we collect your: name, email, zip code, state/town or city, and your own relationship to care. 

• For data analysis and research purposes, we scrub all your information before sharing it with partners in the initiative. 
• For public storytelling purposes, we scrub all personally identifying information, with the exception of your first name or pseudonym, city and state. 
• For the 1 Million Conversations opt-in email list, you have the ability to optionally volunteer your name, ZIP code, and email address, to hear about ongoing updates, narrative insights and findings from the initiative.

Your personal information will never be published, displayed, or shared publicly outside of your first name (or pseudonym) and the city and state where you live. 

If you have security concerns in using your name in your submission, you’re welcome to use a pseudonym as it will not impact the research.

Some potential uses include: campaign materials, social media, events and fundraising, policy and advocacy, training and education, and research and evaluation. For a full list of permitted use cases, see our Story Release Agreement or email careconversations@caringacross.org. 

No. We are committed to protecting your personal information. 

We may share data with internal staff, coalition partners or contracted analysts who are bound by confidentiality requirements, but only to the extent necessary for analytical work for the One Million Care Conversations Initiative. We do not sell, rent, or trade your information to any third party. We retain data only as long as necessary and protect it with reasonable security measures. 

Any data we collect — such as your name, contact details, demographic information, or survey responses —is scrubbed for personally identifiable information before it is shared with research partners in the initiative.

The One Million Care Conversations initiative endeavors to take all reasonable steps to keep secure any information that we hold about you, and to keep this information accurate and up to date. Your information is transmitted internationally to be stored on secure servers protected in controlled facilities. We require our employees and data processors to respect the confidentiality of any personal information.

While digital tools and platforms utilized in this initiative might integrate AI, at this moment no AI-related large language model (LLM) tools are being used for this project. We do not share data and identifying information for respondents with any third parties. 

Like most websites, we collect basic web traffic information (such as IP addresses) to monitor overall usage of our site. This helps us understand web traffic patterns and identify potential issues. We also use identifiers in URLs (website links) within promotional materials to better understand where new supporters are coming from and how to engage them in the care movement.

Cookie technology is used on several parts of our website. Cookies are pieces of information that a website transfers to a computer, tablet or smartphone to analyze website usage and to facilitate a more personalized website experience. Most web browsers are set to accept cookies. If you do not wish to receive any cookies you may set your browser to refuse cookies. This may mean you will not be able to take full advantage of all the functions on the 1 Million Care Conversations website.

We do not intend to solicit personally identifying information from children. Our survey is intended and designed for adults.

For discussion and focus group conversations, participants under 18 years of age are required to have their Story Release Agreement signed by a parent or guardian. 

If we learn we have collected or received personal information from a child under 18 without verification of parental consent, we will delete that information.  

One Million Care Conversations is a multi-organization field initiative run through Caring Across Generations as the lead organization and the Care Can’t Wait Coalition, and this website therefore contains links to other organizational websites. Caring Across Generations is not responsible for the practices or privacy policies of those sites.

Participation in One Million Care Conversations is subject to the following legal terms. 

To fill out the survey, you simply click and respond to questions. Your use of the survey and website indicates that you accept these legal terms. We reserve the rights to change these terms at any time by posting changes online. The One Million Care Conversations website is only to be used for lawful purposes, and in ways that do not infringe or restrict the rights of others or their use of the site. The information on the site, including names, logos, trademarks, pictures, etc., is provided without any representation or endorsement made and without warranty of any kind whether express or implied. By participating in the survey, you hereby release, acquit, and forever discharge the Caring Across Generations and any current or future coalition partner, and the agents, officers, and employees of the above-named entities from any and all claims, demands, rights, promises, damages and liabilities arising out of or in connection with the use or distribution of the survey information or its use. Caring Across Generations will not be liable for any damages including, without limitation, indirect or consequential damages, or any damages arising from the use or in connection with such use or loss of use of the website, whether in contract or in negligence. If you require further information about the use of any content please contact us at info@caringacross.org. Any information or communication that you transmit to or through the One Million Care Conversations website, including any survey responses, comments, information or questions, will be treated as non-confidential and non-proprietary information, subject only to the limitations explained above.

If you participate in a discussion group, focus group, or any long-form listening conversation where your story and voice are recorded, you’ll be required to fill out a Story Release Agreement form, which will detail the legal terms of your participation.

Story release forms will be digitally made available to sign by facilitators or interviewers. To request a copy of the Story Release Agreement Form, please email careconversations@caringacross.org. 

That’s great — we’d love to learn more. Please email your inquiry to careconversations@caringacross.org to be connected to our partnerships team.